Imagine your body needs phosphorus, like you need fuel to run a car. However, your body is losing too much of that fuel, making it hard for your bones to grow and stay strong. This is what happens when you have X-linked hypophosphatemia (XLH): the bone disease Jordin has had to endure.
Not only has she had multiple surgeries on her legs to help straighten them, but she was also accepted into a clinical trial. During the clinical trial, which lasted for three years, she and her family had to fly to St. Louis every other week, meaning she was missing a significant amount of school.
When she was able to make it to class, she often slept during recess, exhausted from the travel. She was falling behind in reading and math, doing as much at home as possible, eventually excelling in state testing. As a junior and senior, she was taking AP classes and plans to attend college where she can pursue a medical degree.
She wrote, “As much as I would like a clean health history, my story was created by the diagnosis. I continue to take injections and have voluntarily entered another trial. My trips are fewer, but it is important to give back to medical science for the future of kids diagnosed with XLH. I was never defined by the disease, but the disease gave me definition.”
We are proud of Jordin for opening up about her journey and allowing us to share it with all of you.
Each year, we select one student as our Student of the Year. This is never an easy choice as so many students have had to overcome difficult obstacles. However, after reading this story of perseverance, we knew it was the one. We have selected Jordin Crow as our Student of The Year and she will be receiving a $5000 scholarship. Congratulations!